This is our Why – our oldest granddaughter Avery has Frederich’s Ataxia. We regularly give to FARA, the Frederich’s Ataxia Research Alliance, who help promote medical studies and trials. No cure yet, but we’re praying.
Friedreich’s Ataxia (FA) is a genetic, progressive neuromuscular disease. People with FA experience issues with balance and coordination of movement that lead to life-altering loss of mobility.
Other symptoms can include fatigue, serious heart conditions, scoliosis, and diabetes. FA is life-shortening and affects an estimated 5,000 individuals in the United States and 15,000 worldwide.
